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Fall Smoothie

'Tis the season for ALL things pumpkin spice. Wanna know a secret? I’m not super crazy about the pumpkin spice craze to be honest. I feel most products totally  hit the mark and many are loaded with sugar and way too sweet.

My Camp Experience

Sumer Camp June 2017 an experience I will never forget. I arrived at the camp, nervous, hesitant and unsure of how it would be. 5 days of camp seemed like a lot for me, someone who loved staying at home. The first day we arrived by bus, a three and half hour drive to Gore, VA. The bus was unloaded and everyone dropped their gear at their rooms and got ready to head to the chapel meeting. Unsure of what to expect from the whole camp experience, I stayed optimistic as I listened to the camp rules and guidelines from the counselors.

We Remember...

Heart For Vegas

In the wake of today's tragedy in Las Vegas, I decided to change direction with the Blog article I had been writing for this week, as it brought up a great deal of reflection that I did not want to pass on processing, yet again.

Such devastating events of magnitude, either of natural disaster or terrorism bring cause for us to remember in our hearts, minds and prayers those who are going through such loss, pain and suffering. We identify with them, and in our own personal ways strive to share love through thought, deed and intention. We remember...

Life’s Greatest Teacher

They looked at me, their faces full of a tragic mix of concern, confusion, and pity, while I coughed and choked on my phlegm for the 2nd time during our dinner double date.

“This is just what she does,” my boyfriend explained as I concentrated on slowing my breathing down and trying to hold back another round of coughing. 

Sandboxes, Scissors, and Snot: A Beginner’s Guide to Preschool with CF

This week, my daughter started 4-year-old preschool, or as we say here in Indiana, “pre-K.” On the first day of school, she literally flew out of her classroom and declared that she had just had the “best day ever." And you know what? So did I. 

"Free Spirit With A Wild Heart"

I had known Vicki for a few years before finally meeting her face to face in 2014 at Champ's Challenge, one of our fundraising events in Vermont. I was struck immediately by two things, one, how could she fit all that light and energy into such a small frame, and two, how could I be more like her? We met one other time in Boston for a CFLF board retreat and again I found myself in awe of her. I’m pretty sure I remember her showing up to the restaurant where the retreat was being held via skateboard.

Reclaiming My CF

For the first time in my life, I’m alright with Cystic Fibrosis defining me. You’re probably thinking, what?! Luisa, are you claiming a defeat, are you succumbing to this disease? No, I’m pulling a Maxine Waters and reclaiming my Cystic Fibrosis, all of it. The good, the bad, the scary, and the uncertainty. All of it is part of my experience as Luisa-- just like I am hispanic and I am a woman, I am also Cystic Fibrosis.

BreatheCON is Back!

We're excited to share that our friends at the Cystic Fibrosis Foundation will be hosting another year of BreathCON. If you missed it last year you can read about it below from Aimee Lecointre (our nutrition blogger) and find out how to sign up to particpate:

It’s back! BreatheCON is back for its second year and it’s going to be another good one!

Back to School

Healthy Body Healthy Mind

It may seem like the last school year just ended, but it is already that time for the next school year to begin! Being educated and prepared for you (or your little one) can significantly reduce the anxiety of not only getting back to school, but also the next step in teaching independance and empowerment with CF. One key logistic pertains to taking enzymes or albuterol in school. Most states and districts have a medication administration form that needs to be completed. Please contact your CF center and get the forms completed before the first day of school.

The Art of Working Hard

This summer has not felt like much of a summer. There have been a few hot days but they’re usually followed by a week of rain and 60 degree weather. Most nights I still have to pull up the extra blanket that I leave folded at the end of the bed just to stay warm.


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