The month of May is nationally recognized as Cystic Fibrosis Awareness Month. It is important to not only wave the banner of cystic fibrosis (CF) in reminding people about the genetic disease that causes chronic congestion, lung infections and digestive compromise, but to also understand why awareness is important for those of us living with cystic fibrosis.

As a person living with the disease, I can attest to the importance of empowerment in dealing with the daily challenges and lifelong courage that it takes to survive CF. Public awareness contributes not only to high-level funding for research of new treatments and a potential cure, but can also directly affect how people with the disease see themselves.

Since 2007, the Cystic Fibrosis Lifestyle Foundation (CFLF) has awarded more than $450,000 to 850 people to overcome financial obstacles to exercise activities, which provide a better quality of life physically and mentally. The Recreation Grants we award to people with CF who need it the most is a tool that goes beyond medicine and provides the foundation for living STROLO — STROnger and LOnger lives.

Xavier, a seven-year-old grant recipient, was only diagnosed with CF at age six. He loves to rock climb because “It teaches me to keep going and never give up.” When he approaches a climbing wall, whether or not he succeeds at the challenge can be impacted greatly by whether others in the room are cheering “You can do it!” versus asking what rock climbing is in the first place. Living with CF is no different.

Lack of awareness and understanding cystic fibrosis can commonly lead to fear, judgment and worst of all, pity. Such response from the public contributes to people who live with CF keeping the disease hidden due to possible stigma, instead of being proud of the accomplishment, discipline and determination required to face this challenge every day.

A closeted life with this genetic lung disease can be painful, frightening and isolating, which leads to anxiety, depression, a poor quality of life and potential for early death. Life with CF can also be full and rich with laughter, adventures and accomplishment. CFLF Recreation Grants make an active life with exercise and fitness possible, while contributing to the importance of mental well-being.

How each person living with the disease perceives himself or herself, and is perceived by others, is critically important. Public awareness and understanding support those living with cystic fibrosis and contribute to a culture of acceptance and empowerment.

Your contribution directly impacts the life of people with CF through a Recreation Grant that affords them the life-affirming message, “You CAN do it!”

We ask for your help this month in acknowledging those who face this challenge in life, past or present, through a donation in their honor that sends a powerful and empowering message that you support such dedication to life.

Xavier WILL reach the top of that wall. It’s just a question of whether you are going to be one of the people in the room not just cheering him on, but also giving him help to succeed in life with cystic fibrosis.