Blog banner 2021


What I Wish People Knew About Cystic Fibrosis

What I wish people knew about cystic fibrosis and life after transplant. 

Practicing Self-Care and Self Compassion (Part 1)

Self-Care and Self Compassion (Part 1)

Hi all! My name is Meg Hall and I am a Licensed Clinical Social Worker (LCSW) at the Maine Medical Partners Pediatric Specialty Care- Pulmonary 

Unexpected Medical Surprises

I was diagnosed with cystic fibrosis in 1992, I was two and a half. Before this, I was constantly sick, a runny nose, a thick cough, greasy stools, the usual suspects. Doctors concluded that I suffered from pneumonia from the day I was born, so by four years old my right lung was just a sac filled with infection. I ended up having my right upper lobe of my lung taken out. It wasn’t completely unexpected, because I had been so sick, but for new parents, it was a bit unexpected for parents expecting a healthy child. 

Rare Disease Day 2022

I have been an advocate for a rare disease called cystic fibrosis for most of my life. I have been fundraising and raising awareness since I was in a stroller doing walkathons. I won a contest where I designed a nascar when I was 10 years old through a non-profit and was able to share my journey with CF all over the United States. As I grew older, I started to take on the advocate role as I witnessed the demons of a rare disease.

Re-post: Lessons Outside the Classroom

From Kindergarten, we are taught all the basic subjects: math, science, reading, writing… These prepare us for our careers. Some for basic life skills. Cooking in Home Economics (is that still a class?!) Working out our bodies in physical education. How to balance a checkbook in Accounting (does anyone else do that anymore?) But where are we taught how to deal with the heavy matters of life? What class can we take on that?

Bye 2021 Hello 2022

Since the beginning of the pandemic it has been hard to make goals and stick with them. I know I’m not the only one struggling with this. Every January 1st we all have aspirations and goals for the new year. Some stick to them for the first few weeks to a few months and then fade off.

Salted Chocolate Peanut Butter Rice Crispy Treats

I love a good rice crispy treat and I also really love peanut butter, so I decided to combine the two and make this healthier peanut butter rice crispy treat topped with a chocolate drizzle and flaky sea salt.

When you’re looking for a healthier, delicious, and easy treat to make, these are it!

Salted Chocolate Peanut Butter Rice Crispy Treats 

Thanksgiving Madness

I am an artist, I paint, I draw, I make books, and small objects. Overall a craftsperson. One would think that I would get a part-time job working in an art studio, or a gallery. Nope, not me. I found myself taking the first place that answered back. Mal-Wart. Being like many twenty-somethings my age, locked between a rock and a hard place working at a place that can literally fit the definition of a dead-end job. I find myself as a fish out of water, out of shape in a security guard position.

Running For Life

We are all in perpetual motion and there’s not one right way to live all the time.


Support CFLF