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Bye 2021 Hello 2022

Since the beginning of the pandemic it has been hard to make goals and stick with them. I know I’m not the only one struggling with this. Every January 1st we all have aspirations and goals for the new year. Some stick to them for the first few weeks to a few months and then fade off.

Salted Chocolate Peanut Butter Rice Crispy Treats

I love a good rice crispy treat and I also really love peanut butter, so I decided to combine the two and make this healthier peanut butter rice crispy treat topped with a chocolate drizzle and flaky sea salt.

When you’re looking for a healthier, delicious, and easy treat to make, these are it!

Salted Chocolate Peanut Butter Rice Crispy Treats 

Thanksgiving Madness

I am an artist, I paint, I draw, I make books, and small objects. Overall a craftsperson. One would think that I would get a part-time job working in an art studio, or a gallery. Nope, not me. I found myself taking the first place that answered back. Mal-Wart. Being like many twenty-somethings my age, locked between a rock and a hard place working at a place that can literally fit the definition of a dead-end job. I find myself as a fish out of water, out of shape in a security guard position.

Running For Life

We are all in perpetual motion and there’s not one right way to live all the time.

Hey Parents, It’s Okay to Not Be Okay

“I like your headband,” my daughter says out of the blue, bike helmet in hand. “And your purple pants. You look like Superwoman!”

“I feel like Superwoman today,” I smile. “I’m strong, and I can do hard things.”

My daughter nods and zooms down the driveway. A year ago, she would have walked her bike down the small slope with caution. Now she’s learning to ride with no hands.

Muscles in Reverse

I never used to be a person who worked out or liked working out before my transplant, which can mean many things, it can mean the 26 years before I actually got my transplant or the 1-2 years right before transplant or my time waiting on the list for new lungs.

Beauty in the Struggle

“Roses are red. Violets are blue. Things may seem tough but you’ll get through.” This poem was written in crayon and framed above the computer in room where I did my pulmonary function tests (PFTs) growing up. I visited this room every 3 months from ages 5 to 19. I remember thinking those words over and over in my head as a kid, in hopes they’d calm me down and better my results. Looking back I think it’s pretty clear that I had PFT anxiety.

Twelve things you might not know about people with CF, but probably should

I should preface this post by saying that the list I’ve created does NOT pertain to everyone with CF. I’m hoping that there will be a few that others with CF can relate to, but of course all people with (or without) CF are different, so this is just a list I created from things I’ve noticed in my own life and seem like common threads among all of us with CF.

A New CF Generation Begins

Brian in the swing

Growing up, I remember how structured and regimented our treatments and medications were kept in striving to keep me as healthy as possible as much as possible with the hopes of medical advancements that would help that goal be more and more achievable with the hope of a cure being on the horizon of my lifetime.  These were the days when mucomyst and manual chest physiotherapy (postural drainage with clapping on my chest, sides and back) along with digestive enzymes were the only tools of daily disease management.

It's A Wonderful World

The words leaped off the screen like a lighthouse in the storm.“FDA approves

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