Please email applications to Grants@cflf.org

or mail applications to:

Cystic Fibrosis Lifestyle Foundation (or CFLF)

PO Box 1565

Ronkonkoma, NY 11779

First Grant Cycle Deadline - March 31, 2023 - 11:59pm EST

Second Grant Cycle Deadline - September 30, 2023 - 11:59pm EST

Cystic Fibrosis Recreation Grant Guidelines:

Due to limited available funding, the CFLF is not able to approve all Recreation Grant requests.
Recreation Grant requests may not exceed $500 (or $1,000 for a Peer Support grant).
CFLF will only consider COMPLETE applications, this includes answering ALL questions AND including a photo. If information is missing, a letter of denial will be sent.
Applicants may only submit one type of application at a time.
The annual financial information for the household (including ALL members in the household) that we ask for helps us to evaulate financial need. Leaving this field blank will have a negative impact on the review of your application.
Applications MUST be completed by the person with CF. If a child is unable to write the parent or guardian may transcribe for them, but the words must come from the applicant.
Applications are reviewed bi-annually with deadlines on:

o March 31

o September 30

o Applications must be received no later than midnight on the day of the deadline

o Loretta Morris Fund and Canadian grant applications are accepted on a rolling basis and may be submitted any time.

CFLF will pay directly for activities (within six months following the deadline) to the billing activity company or organization. Funds, including reimbursement for past actviities, will NOT be paid to the grant recipient.
Funds may not be requested for the purchase of equipment, unless a necessary exception has been deemed appropriate. (Please contact us ahead of time to discuss).
If an applicant is denied, they may reapply for the same, or different activity, with a new application as soon as they would like.
Only one Recreation Grant can be awarded per recipient per year. (Example: If an applicant was approved in April 2020, they would not be elibigle for approval again until April 2021).
We ask that applicants agree to provide feedback during the period of their grant at intake, 12, and 24 months. The “CF Questionnaire” (CFQ-R) is a four-page assessment tool that has been thoroughly studied for reliability and validity. We have received permission to use this tool to assess any effects on the physical, psychological and social quality of life for the grant recipients.
A Letter of Reference may be included with the application, but it is not mandatory. If one is included, it should be from someone who is familiar with the applicant and with CF. Examples include, CF doctor, nurse, dietician, respiratory therapist, pulmonologist, or social worker.

EXAMPLES OF ACTIVITIES FUNDED BY CFLF:

Recreation Grants