Board Member Description

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CFLF Board Member Duties & Responsibilities

Title:  CFLF Board Member

Location:  Home office – Miami, FL; Programming Office – Burlington, VT

Mission statement:  The Cystic Fibrosis Lifestyle Foundation (CFLF) assists in providing avenues toward healthy and active lifestyles through recreation, thereby empowering and educating people with cystic fibrosis (CF) on the critical psychological, social and emotional connections between their lifestyle and their health.

CFLF Background:  The CFLF is a non-profit, 501(c)3, and was founded in 2003 by Brian Callanan, also an adult with CF. Brian’s experience with the physical, psychological and social adversities of chronic illness inspired the work of the CFLF to improve the quality of life for others also living with cystic fibrosis. The CFLF is serving the CF community internationally.

Position Summary:  The CFLF Board Member will be required to meet regularly (via conference call) to discuss strategic direction, financial position and actions, and fulfill objectives of the CFLF mission. Board Members are also expected to participate on a sub-committee of the Board.  This is a voluntary position.  The current Board is seeking candidates with experience or expertise in the following areas, but not limited to:

• Non-profit organizational leadership
• Fundraising
   o Event planning experience and willingness to produce and/or participate in major fundraisers
   o Exploration / creation of new fundraising ideas and efforts
• Graphic design
   o Ongoing development of event posters, website improvements, and other promotional materials.
• Web maintenance experience
   o Support web design, updates, and development.  The CFLF website is the central connection to the public and is a critical component of success.
• Business development and/or sales experience
   o Generating sponsors & major donors
   o Continuing/enhancing relationships with existing donors
   o Development of strategies and new methods to increase donor contributions.
• Financial/ Accounting Expertise
• IT / software knowledge
• Marketing expertise
   o Public relations management and/or marketing communications
   o Strategic marketing development
   o Creation of promotional materials
• Legal background (JD desired)
• Large network
   o Ability to promote the CFLF mission as an ambassador to the broader community

Candidate Qualifications:

Directors shall be of the age of majority in this state. Other qualifications for directors of this corporation shall be as follows:

(a) Personally committed: have a direct or personal interest in cystic fibrosis and the well-being in the lives of people and/or a specific individual or family faced with this challenge;
(b) Supportive: be supportive of the CFLF staff members and other board members and be supportive of the people and families living with cystic fibrosis and their life challenges;
(c) Welcoming: be welcoming to all types of individuals with chronic conditions with a focus on the needs of people with CF;
(d) Empowering: empower the CFLF staff members and other board members to carry out the CFLF's mission statement and empower individuals and families in the greater CF community;
(e) Community: a commitment to fostering the greater CF community, supporting CF patient-focused action in the greater community, and making decisions that honor CFLF as a community-based, nonprofit organization;
(f) Celebratory: celebrate the contributions of ALL members of the CF community - historically, currently, and future possibilities - and the importance of diverse, constructive opinions about these contributions;
(g) Dedicated: we expect all the CFLF Board members to commit the time and energy necessary to accomplish what board members signed-up to do. If expectations are too high or can’t be met, take proactive steps to rethink, revise, and readjust to prevent broken promises that could derail the progress of the CFLF. Both successes and failures are valuable lessons and opportunities to improve the CFLF.

Additional Qualifications Include:
• Passionate about the CFLF cause 
• Creative thinker
• Optimistic orientation in making growth out of challenge
• Related experience guiding a non-profit into the future, including envisioning and implementing a strategic plan.
• Collaborative in working amongst a group of board members who bring unique skill-sets to the table


General Powers
The Board of Directors (“Board”) is responsible for the overall policy and direction of the organization and delegates day-to-day operations to the executive director, volunteer staff, and committees. No Director shall simultaneously serve as both Director and on the CFLF’s staff.

Typical Responsibilities of a Non-Profit Board Member
The board of directors defines and guides our mission, establishes priorities, crafts strategies, and ensures that plans and programs are implemented. Board Directors are involved in the CFLF’s fundraising efforts. Directors are expected to spread the word about the CFLF’s work, use their connections to gain access to potential donors, actively participate in fundraising campaigns, and – when financially feasible -- make their own donations. Directors may be involved behind-the-scenes or be asking for money directly. The annual target for each Board member to strive toward generating is $5,000.

Board Directors are highly encouraged to volunteer at CFLF virtual and physical events, online or mailing campaigns, and programming efforts in support of serving the CF community directly.


Each Director shall hold office for a term of two (2) years. A Director who completed three consecutive terms may seek subsequent reappointment to the board for one (1) year periods. After a maximum of ten (10) consecutive years, a Director may seek reappointment to the Board after a term of twelve (10) months of not serving as a Director of CFLF.

a. On the odd calendar year, the terms for President, Secretary, and one-half (rounded up) of the board positions begin.

b. On the even calendar year, the terms for Vice President, Treasurer, and one-half (rounded down) of the board positions begin.

These are volunteer positions and no Board Director shall receive compensation from CFLF for executing their duties.


Officers and Duties
There shall be four (4) officers of the board, consisting of a president (also holds chair position), a vice-president (also holds vice-chair position), a secretary and a treasurer. In addition to the powers and duties of Directors specified below, the officers shall have such powers and perform such duties as follows:

The President (and chair) shall convene regularly scheduled board meetings, shall preside or arrange for other members of the Executive Committee to preside at each meeting in the following order: vice-chair, secretary, treasurer.

The vice-president (and vice-chair) shall chair committees on special subjects as designated by the board.

The secretary shall be responsible for keeping records of board actions, including overseeing the taking of minutes at all board meetings, sending out meeting announcements, distributing copies of minutes and the agenda to each board member and to the volunteer staff of CFLF, and assuring that corporate records are maintained.

The treasurer shall make a report at each board meeting. The treasurer shall chair the finance committee, assist in the preparation of the budget, help develop fundraising plans, and make financial information available to board members and the public.


Main Board Duties (summary/review):

Attend board meetings (can be conference call), record minutes, appoint a chair, etc.

Recruit additional board members if serving on a Board Development Committee

Generally provide oversight to the organization and of the Executive Director

Expected that will look like a number of reporting/dashboard/information provided by the Executive Director and the management team, e.g. financial statements, budgets, success metrics.

The executive/director level of staff will be invited to all board meetings (Executive Director, Director of Marketing/Communications, Director of Programming, Director of Operations).

Other staff may attend per request through the executive director or may attend due to presenting large monetary expenditures for improvement. Example: a website redesign carries a $10,000 price tag, and the Communications Coordinator would present a proposal on the various redesign possibilities.

Note: The board also only makes decisions when in session; the bulk of the operational load and the day-to-day is the staff.

To Apply:
To submit for consideration in becoming a member of the CFLF Board of Directors, please send:

1. A current résumé or CV, and
2. A one-page letter of interest addressing:
   • Your personal connection to or passion for the cystic fibrosis community
   • Any volunteering/fundraising experience, highlighting any experience at a Board level
   • Your identified personal strengths
   • How you believe you could best contribute to the growth of the CFLF
   • Your perspective on fundraising and Board responsibility for financial health of the CFLF

To Submit:

Email to:   


Mail to: CFLF
936 SW 1st Ave. #248
Miami, FL 33130

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