CFLF Blog

Easy Meals that Taste Like Home

Have you perused the cookbook selection on Amazon lately? I can hardly keep up. Mediterranean Diet. Paleo Diet. Ketogenic Diet. Vegan Diet. Raw Food Diet. Am I missing any? Probably. But you know the diet I hardly ever – correction, NEVER – come across online? The diet intended to help impressionable readers / impulsive cart adders gain weight. Yes. Gain weight.

Cultivating Healthy Eating Habits in Our Children

Disclaimer: The following recommendations are not meant to be treated as medical advice. Contact your CF team’s dietician and work closely with medical professionals to implement a specific feeding intervention strategy for your family.

Why Your Donation Matters

I was 21 when I received my first grant from the CFLF, and it simply changed the outcome of my life. In my younger years I suffered from the mental hardships that cystic fibrosis patients are known to endure. I was lost and felt like I had no calling in life except to be sick. It was a terrible way to live. But one day I decided to take a chance and attend a yoga class, and EVERYTHING clicked.

Beauty in the Struggle

“Roses are red. Violets are blue. Things may seem tough but you’ll get through.” This poem was written in crayon and framed above the computer in room where I did my pulmonary function tests (PFTs) growing up. I visited this room every 3 months from ages 5 to 19. I remember thinking those words over and over in my head as a kid, in hopes they’d calm me down and better my results. Looking back I think it’s pretty clear that I had PFT anxiety.

Ventura Sunset - 2018

As the sun set on 2018, I reflected on what a good year it had been. I was in good health for the year with no hospitalizations. Here I am at seventy-two (72) years old and maintaining my active lifestyle: swimming laps, golfing, regular walking and yoga. It is not always easy to be compliant with daily treatments for CF but I am consistent and I am still here. I have had the benefit of Vertex, Kalydeco (Ivacaftor) for three years and what a difference it has made.

Lessons In CF Related Arthritis

We all know having CF is hard, for many different reasons. Physically, one of the most difficult aspects of having CF for me is joint pain.

It’s been more difficult than the two major back surgeries I had and even more intense the time I had to have the hole for me feeding tube reopened with no anesthetic, nothing to numb the area, and nothing for the pain. But that’s a story for another day, a rather interesting and wild one!

The Best Gift of All

It’s December 23rd, and I’m watching the Christmas lights twinkle on the tree.  We were going to get a real one until we remembered last year’s adventure, what with the tree nearly careening off the car into oncoming traffic four or fifteen times.  No, this year, we went with the old standby.  An artificial beauty that was efficiently pre-lit until the cat scaled the tree and gnawed every cord.  Still she stands, elegantly hoisting the dainty pre-kids ceramic ornaments just out of grabbing distance.  Her lower extremities hang low with hand-made treasures from our eight-year-old son and fiv

Knock Out CF- San Diego

I remember very clearly, to the day, when the Cystic Fibrosis Lifestyle Foundation saved my life.

I was visiting my family in Dallas, TX and they were out to get groceries while I stayed behind.

My wheelchair, was in the corner of the apartment. My medications littering the kitchen table, cupboards, and counters.

Faith in Humanity

In spite of everything, I still believe that people are really good at heart. – Anne Frank.

Everybody Fights

Fight banner

Next week the CFLF will hold it’s fourth annual KnockOut CF - Boston event at George Foreman III’s gym, Everybody Fights (formerly named The Club).

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