The CFLF welcomes both regular and guest authors for the CFLF Weekly Blog. Please review the monthly topics and leader questions to consider in submitting your writitng piece. Articles must be submitted by the last day of the month preceding the topic of the month they are written for (example: articles on CF Awareness Month would need to be submitted by the end of April for posting consideration in the month of May).
Please email your article to info@CFLF.org with:
January- New Years Goals
What personal, career, academic or physical goals do you have for 2022?
Do you have any bucket list items that you plan on crossing off this year?
What do you love the most about winter?
What is your favorite winter activity?
What is something you want to let go of this year?
February - Rare Disease Day (28th) & Advocacy
What is your personal experience with advocacy?
Why does advocacy appeal to you?
What is the importance of awareness?
Are there impacts you have seen from your advocacy/awareness efforts?
March- Unexpected Medical Surprises
Have you ever been in the hospital and then they spring an unexpected procedure on you?
What random medical issue had popped up when you least expected it?
When things went wrong
Medical emergencies
April- Organ Donation Awareness Month
How does organ donation impact your life?
What was or is your perspective on being a donor recipient in the past or future?
How can individuals contribute to Organ Donation awareness?
May- CF Awareness month
Why do you consider awareness important for those faced with cystic fibrosis?
What are some ways that you have personally contributed to CF awareness?
What is the most challenging aspect of advocating for cystic fibrosis awareness?
What do you find to be the most important part of CF Awareness Month?
June- CF and Family
How has your family impacted your life with CF?
What is the most powerful family experience you have had?
How does having CF for yourself or your partner affect your perspective on parenthood?
If you are a parent or spouse with CF, what do you hope to most impart on your children?
July- Nutrition and CF
What is your favorite recipe and why? (please share the recipe)
How has nutrition affected you or your loved one with CF?
What do you consider the most important element of nutrition in living with CF?
August- CF and Mental Health
What are some remedies you have for helping with keeping yourself grounded?
What is your self-care regimen?
How does your life with CF affect your mental health?
How has your mental health affected your physical health?
September- Back to school
How do you prepare for the start of school?
Virtual Classes: how have you adapted to the new look of school?
What are tips and tricks of how you or your child bring CF to school with them?
How do your or your child explain their CF to others?
October- Exercise and CF
What are some of your favorite exercises to help with your CF?
How do you manage to build exercise into your daily routine with CF?
If you are on a CFTR modulator, what has your experience been with exercise since starting treatment?
What is an exercise or activity that you have never done before, but would love to try?
November- Holiday Stories
Have you ever spent thanksgiving or any other holiday in the hospital?
What are some of your holiday traditions
Do you have any CF friendly holiday dishes?
DO you have a funny holiday story
December- Looking back at 2022
What are some of your best moments from this year?
What are your aspirations for next year?
What goals did you accomplish this year?
How far did you get with your New Year's resolution?
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